Hello friends,
if any of you out there either here in the USA or in the world, are having above heart conditions. I would love to hear from you. I would love to have a social support group. I am a sufferer of this disease. I had my first open heart surgery in Germany when I was 9 years old. My second surgery, I had in the USA in 1997, than in 2001 I had my 3 surgery. Now I am probably in for another surgery. If you feel comforable sharing your experience in fighting this conditon, please feel it in your heart to share. People do not understand what I am going through, cause they do not have that heart condition. Hugs to all of you. May we make new friends.

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